Brenan 3 weeks

April 17th

Brenan's bili level went up today. I was told he could come home today if his levels were under 17. His level was 16.4 (that is cutting it close). They are starting the discharge process. There is tons of paperwork and pass offs to do. We should be able to leave around 3pm. He will have to be on bili lights at home but that is okay. We are so excited to bring our baby home today!!!!!!!!!!!!!!

April 16th

I have been told several different things regarding feeding for Brenan. His nurse this morning said that it would be Tuesday at the soonest for him to go home. He would have to do 4 feedings a day then 12 hr feeding then 24 hour feeding. The nurse tonight called the doctor to get me an answer they are going to let me feed him during the night and see how he does so if all goes well which he has been doing great with his feedings then there is a possibility that he will get to come home this weekend. Lets keep our fingers crossed.

April 16th

Brenan is more alert everyday. He has started opening his eyes. He is such a curious little boy. He likes to look around to see what is going on. They have ordered 3 feedings today. They may pull out his PICC line today and then we can start the weighing/feeding process. I am told this could take 3-4 days depending on how well he feeds and digests the food. He has been doing well but I am hoping when they stop the TPN (IV fluids) and lipids (which they have stopped the lipids this morning) that he will take off. Once they remove the PICC line there is a good possibility that they will move him to the nursery. They are overcrowded here so they have babies everywhere so they are not really sure where he would end up if they moved him. It is so good to be able to hold him and not have a time limit. He is so relaxed and at peace when we hold him. His bili levels also came down slightly being off of lights so hopefully we are done with those also.

I am definatley getting worn out. It is very hard to spend time with my kids and be at the hospital. I really appreciate all of you that have been helping with my kids and making them feel special. It has been nice not to have to worry about them. So THANKS to all of you for your help and concern. We are definately on the upside of this and we hope that we will be home soon and our family will be complete.

April 15th

Today I get to try two feedings, which means I also get to hold him. He is doing really great. He has no more machines to help him breathe. He is doing it all on his own and doing great. His nose is still swollen from the machines and his eyes are still bruising but every day he is started to look less bruised and battered. The doctor evaluated him in the afternoon and has determined that he can be off of phototherapy (lights) and can stop the IV antibiotics as the infection has cleared up. They have pulled the IV from his arm but he still as PICC line and gets tube feedings. He is such a brave little boy and he is doing great!

April 14th

Brenan is still off of CPAP. He is doing well. He did really well on his first feeding today. His bili levels have come down but he still needs lights.