April 13th

Sometime during the night Brenan decided he did not want his ventalator so he pulled out the tube. He did real well off of the machine for a few hours but then he started to have a little struggle breathing. They put him back on the CPAP. His bili levels had also gone up (Jaundice) so they now have him on 2 bili lights vs the one he was on yesterday. Everyday we see him you see a improvement. We were also able to hold him today. We each got to hold him for 20 mins but he was so at peace when we were holding him. It is a little bit of a challenge to just hold him and not rock and cuddle him but with all of the wires, tubes that is all we can do. I did not want to give him up to put back in his bed. Later that night when we got there and I was talking to him he started to cry. It was such a good sound. We have not been able to hear any sounds since birth due to the tubes in his throat. It also is hard to hear him cry because there is nothing you can do for him.